Rare Disease Patient Stories

Over the past 8 years, through our partnership with Ecast Productions we’ve been privileged to capture moments and portraits of people from all over the world who are living with extremely rare and often untreatable diseases. These images along with short videos are made for, and used by patient advocates and pharmaceutical companies to inspire and educate others suffering from the same diseases. I have met and photographed nearly 100 people and their families from 5 to 85, and they have changed my life. This gallery is dedicated to all these amazing people who let us into their lives.